Nuevo paciente con Fibrosis Quistica, Alfonsito de 3 meses

fibrosis

Amigos en el día de ayer , recibimos a un nuevo paciente con Fibrosis Quistica, Alfonsito de 3 meses de vida, recién diagnosticado. A pesar de haber sido diagnosticado y tratado por Coqueluche, en el Hospital de Copiapo , sus padres atentos a todos los síntomas viajaron a Santiago para saber otras opiniones. En la Clinica Alemana de Santiago, le diagnosticaron Intolerancia a la Lactosa.

Finalmente por indicación de otro profesional le hicieron Test de Sudor.

 

Quiero contarles que como padres, como Directorio y Presidenta de la Corporación , siento una gran inquietud por la falta de interés, información y profesionalismo de parte de los profesionales de salud. Estamos cierto que aún en este siglo existe mucha ignorancia y desconocimiento de esta patología. Sin embargo nuestra lucha , es para que cada día no sucedan estas limitantes situaciones. Su caso fue informado a la Dra. Lina Bozza, encargada de Fibrosis Quística a nivel Nacional y será informado con los documentos necesarios a los Señores del Ministerio de Salud.

La Corporación en ayuda a Alfonsito, se les entrega a sus padres Víctor y Priscila , de información, orientación, además un Nebulizador PAri, para que pueda completar su tratamiento, mientras se gestionan los Garantías Explicitas de Salud.

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